Multidisciplinary integrated care pathway for von Hippel-Lindau disease.
Wendy P G WoltersKoen M A DreijerinkRachel H GilesAnouk N A van der Horst-SchriversBernadette van NesselrooijWouter T ZandeeHenri J L M TimmersTatjana SeuteWouter W de HerderAnnemarie A Verrijn StuartEmine KilicWillem M BrinkmanPatricia J ZondervanW Peter VandertopAnthony B DanielsTijmen WolbersThera P LinksRachel S van LeeuwaardePublished in: Cancer (2022)
Medical specialists (internists, urologists, neurosurgeons, ophthalmologists, geneticists, medical oncologists, neurologists, gastroenterologists, pediatricians, and ear-nose-throat specialists) together with specialized nurses play a vital role alongside health care professionals in providing care to people affected by VHL and their families. This article presents a set of consensus recommendations, supported by organ-specific guidelines, for the roles of these practitioners in order to provide optimal VHL care. This care pathway can form the basis for the development of comprehensive, integrated pathways for multiple neoplasia syndromes.