Impaired social functioning in adolescent and young adult (AYA) sarcoma survivors: Prevalence and risk factors.
Cas DrabbeElena S CoenraadtsWinan J van HoudtMichiel Adreanus van de SandeJohannes J BonenkampJacco J de HaanJohanna W M NinCornelis VerhoefWinette T A van der GraafOlga HussonPublished in: Cancer (2023)
Sarcomas account for almost 11% of all cancers in adolescents and young adults (AYAs; 18-39 years). The AYA group is increasingly recognized as a distinct oncological age group with its own psychosocial challenges and biological characteristics. Social functioning has been shown to be severely affected in AYA cancer survivors. A population-based questionnaire study to identify AYA sarcoma survivors with impaired social functioning (ISF) and determine factors associated with ISF was conducted. More than one-quarter of AYA sarcoma survivors experience ISF long after diagnosis. These results emphasize the importance of follow-up care that is not only disease-orientated but also focuses on the psychological and social domains.