Indicators of health in Down syndrome: A virtual focus group study with patients and their parents.

Stephanie L SantoroMaria J CabreraKelsey HaugenKavita KrellVanessa L Merker

Published in: Journal of applied research in intellectual disabilities : JARID (2023)

Partcipants discussed physical, social, and mental well-being components of health in Down syndrome. Interviewing individuals with Down syndrome in virtual focus groups with appropriate modifications added important self-report health information.

Keyphrases

health information
mental health
healthcare
social media
public health
ejection fraction
end stage renal disease
newly diagnosed
physical activity
risk assessment
human health
patient reported