Prospective evaluation of the family's health-related quality of life in pediatric intestinal failure.

Victoria C NeamAnna FainoMichael O'HaraDanielle WendelSimon P HorslenPatrick J Javid

Published in: JPEN. Journal of parenteral and enteral nutrition (2021)

Families of children with IF experience a decreased HRQOL that may improve with patient age. Intestinal rehabilitation programs should address the HRQOL of families in addition to patients.

Keyphrases

end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
public health
prognostic factors
peritoneal dialysis
case report
patient reported outcomes