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Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study.

Kate KhairElizabeth ChalmersThuvia FlanneryAnnabel GriffithsFelicity RowleyGuillermo TobaruelaPratima Chowdary
Published in: Therapeutic advances in hematology (2021)
UK healthcare professionals appear to be aligned on the clinical goals and role of ITI when managing haemophilia patients with inhibitors, although novel treatment developments may require reassessment of these goals. Lack of consensus on prophylaxis with bypassing agents and management of mild/moderate cases identifies a need for further research to establish more comprehensive, evidence-based treatment guidance, particularly for those patients who are unable/prefer not to receive non-factor therapies.
Keyphrases
  • healthcare
  • end stage renal disease
  • palliative care
  • clinical practice
  • ejection fraction
  • chronic kidney disease
  • quality improvement
  • patient reported outcomes
  • pain management
  • replacement therapy