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Configurations of atypical parenting activism in disability and chronicity.

Martha Cristina Nunes Moreira
Published in: Ciencia & saude coletiva (2022)
This article aims to reflect on the configurations of atypical parenting in the field of disability and chronicity. The atypical emic category composes with these fields. Associative symbolicities are explored with an ethnography in social media and interviews with activists. We indicate ongoing processes in the anticapacitist struggle that dialogue with agendas of Politics as Care. We conclude that "atypical activist parenting" operates with meanings and learnings of living and being familiar with disability/chronicity/rarity in proximity to a son/daughter, not being restricted to biographical ruptures.
Keyphrases
  • social media
  • multiple sclerosis
  • healthcare
  • health information
  • palliative care
  • pain management