Development of a patient-reported outcome measure for the assessment of symptom burden in pediatric chronic kidney disease (PRO-Kid).

Natasha Arianne Jawa Adam Rapoport Kimberley Widger Michael Zappitelli Sara N DavisonSarita JhaAllison B Dart Mina Matsuda-Abedini

Published in: Pediatric nephrology (Berlin, Germany) (2021)

PRO-Kid is the first pediatric CKD/kidney failure-specific PRO tool to assess symptom burden. Future work should validate this tool in a larger cohort so that it may be used to improve the care of children living with CKD/kidney failure. A higher resolution version of the Graphical abstract is available as Supplementary information.

Keyphrases

chronic kidney disease
patient reported outcomes
end stage renal disease
anti inflammatory
healthcare
palliative care
young adults
risk factors
quality improvement
patient reported
health information
chronic pain
social media
affordable care act