Identifying the capabilities for creating next-generation registries: a guide for data leaders and a case for "registry science".
Steven E LabkoffYuri QuintanaLeon RozenblitPublished in: Journal of the American Medical Informatics Association : JAMIA (2024)
A novel field, registry science, within the clinical research informatics domain, has arisen to offer its insights into conceiving, structuring, and sustaining this new breed of tools.