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The Use of Social Media to Recruit Participants With Rare Conditions: Lynch Syndrome as an Example.

Allison M Burton-ChaseWendy M ParkerKelsey HennigFaith SissonLinda L Bruzzone
Published in: JMIR research protocols (2017)
This approach has several advantages, including recruitment through a trusted source outside of a clinical setting, higher response rates, and cost-effectiveness with a small research team in a relatively short amount of time. Overall, social media recruitment with a trusted online partner can be highly effective in hard-to-reach clinical populations, such as patients with LS. However, this approach requires additional effort for eligibility screening.
Keyphrases
  • social media
  • health information
  • healthcare
  • case report
  • hiv infected
  • human immunodeficiency virus