A DELPHI study on aspects of study design to overcome knowledge gaps on the burden of disease caused by serogroup B invasive meningococcal disease.
Ole MartenFlorian KoerberDavid BloomMonika BullingerCorinne BuysseHannah ChristensenPhilippe De WalsChristian Dohna-SchwakePhilipp HennekeMarkus KirchnerMarkus KnufBurkhard LawrenzAndrea L MonteiroJoseph Patrick SevillaNicolas Van de VeldeRobert WelteClaire WrightWolfgang GreinerPublished in: Health and quality of life outcomes (2019)
Better conceptualisation of the structure of IMD-specific sequelae and of how their diverse forms of severity might impact the QoL of survivors of IMD as well as their family network and care-providers is needed to generate relevant, reliable and generalisable data on QoL in the future. The results of this DELPHI panel provide useful guidance on how to choose the study design, target population and appropriate QoL measures for future research and hence, help promote the appropriateness and consistency in study methodology and sample characteristics.