Long-term unmet supportive care needs of teenage and young adult (TYA) childhood brain tumour survivors and their caregivers: a cross-sectional survey.

Emma NicklinGalina VelikovaAdam GlaserMichelle Kwok-WilliamsMiguel DebonoNaseem SarwarFlorien Boele

Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2021)

This research provides leads to improving supportive care and long-term follow-up services. Psychological support represents the biggest gap in care. Understanding unmet needs and recognising what services are required are critical to improving quality of long-term survival.

Keyphrases

healthcare
palliative care
quality improvement
young adults
affordable care act
primary care
mental health
pain management
health insurance
depressive symptoms
brain injury