Shifting responsibilities: A qualitative study of how young people assume responsibility from their parents for self-management of their chronic kidney disease.
Ruth NightingaleGretl A McHughVeronica M SwallowSusan KirkPublished in: Health expectations : an international journal of public participation in health care and health policy (2022)
Patient and public involvement was integrated throughout the study, with young adults with CKD and parents who had a child with CKD actively involved in the study's design and delivery.