Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.
John D PaulingRobyn T DomsicLesley A SaketkooCelia AlmeidaJane WitheyHilary JayTracy M FrechFrancesca IngegnoliEmma DuresJoanna RobsonNeil J McHughAriane L HerrickMarco Matucci-CerinicDinesh KhannaSarah HewlettPublished in: Arthritis care & research (2018)
We have explored the patient experience of SSc-RP in a diverse and representative SSc cohort and identified a complex interplay of experiences that result in significant impact. Work to develop a novel PRO instrument for assessing the severity and impact of SSc-RP, comprising domains/items grounded in the patient experiences of SSc-RP identified in this study, is underway.