A nationwide survey of hospital-based thalassemia patients and standards of care and a preliminary assessment of the national prevention program in Sri Lanka.
Anuja P PremawardhanaRasnayaka MudiyanseShamila T De SilvaNilam JiffryUdaya NelumdeniyaUdaya de SilvaSanath P LamabadusuriyaK PushpakumaraRandima DissanayakaM JanszI RifayaUpul NavarathneV ThirukumaranMahinda ArambepolaWijesundara Dayanada BandaraU VaidyanathaDevan MendisK WeerasekaraNalika De SilvaD K Shantha KumaraSujeewa D AmarasenaK K HemanthaM A C M RefaiIshari SilvaNizri HameedF RajiyahSachith MettanandaAngela AllenDavid J WeatherallNancy F OliveriPublished in: PloS one (2019)
Central coordination of the treatment and ultimately prevention of thalassemia is urgently needed in Sri Lanka. Development of expert centers with designated staff with sufficient resources will improve the quality of care and is preferred to managing patients in multiple small units.