Duchenne muscular dystrophy and caregiver burden: a systematic review.

Erik LandfeldtJosefin EdströmFilippo BuccellaJanbernd Kirschner Hanns Lochmüller

Published in: Developmental medicine and child neurology (2018)

A substantial body of evidence describes caregiver burden in Duchenne muscular dystrophy. Little is known of the family burden beyond caregivers' self-assessments.

Keyphrases

duchenne muscular dystrophy
muscular dystrophy
risk factors
palliative care