'Someone must do it': multiple views on family's role in end-of-life care - an international qualitative study.
Vilma Adriana TripodoroVerónica I VelosoEva Víbora-MartínHana Kodba-ČehMiša BakanBirgit H RasmussenSofía C ZambranoMelanie JoshiSvandis Íris HálfdánardóttirGuðlaug Helga ÁsgeirsdóttirElisabeth RomarheimDagny Faksvåg HaugenTamsin McGlincheyBerivan YildizPilar Barnestein-FonsecaAnne GoossensenUrška LunderAgnes van der HeidePublished in: Palliative care and social practice (2024)
Society, health teams and family systems still need to better support the role of family caregivers described across countries. The model implies that family roles in end-of-life care balance relational autonomy with socio-cultural values. Real-world end-of-life scenarios do not occur in a wholly individualistic, closed-off atmosphere but in an interpersonal setting. Gender is often prominent, but normative ideas influence the decisions and actions of all involved.