Infertility and treatment-seeking practices among females and males with sickle cell disease in the Sickle Cell Disease Implementation Consortium registry.
Eleanor L StevensonPaula TanabeMitchell KniselyRita MaseseDominique BulginLiliana PreissJane S HankinsAllison Ann KingVictor GordeukNirmish R ShahPublished in: Pediatric blood & cancer (2023)
To our knowledge, this is the first study to examine self-reported identification of and treatment for infertility among a large sample of people with SCD. These findings suggest that (a) infertility occurs at a higher rate, but fertility care treatment seeking is less frequent than in the general public; and (b) sociodemographic and clinical differences between individuals who report experiencing infertility and those who do not did not emerge in this study.