A patienthood that transcends the patient: An analysis of patient research partners' narratives of involvement in a Canadian arthritis patient advisory board.
Graham G MacdonaldJenny LeeseAlison M HoensSheila KerrWendy LumLianne GulkaLaura NimmonLinda C LiPublished in: Journal of health services research & policy (2023)
Our findings highlight how the journeys of patient partners connect and integrate seemingly disparate conceptions of what it means to be a patient. One's experience as a clinical 'patient' transforms into the broader notion of civic patienthood.