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Lived experience of Silver-Russell syndrome: implications for management during childhood and into adulthood.

Lisa Marie BallardElizabeth JenkinsonChristopher D ByrneJenny C ChildJustin Huw DaviesHazel InskipOluwakemi Lokulo-SodipeDeborah J G MackayEmma L WakelingI Karen TempleAngela Fenwick
Published in: Archives of disease in childhood (2018)
Challenges in SRS during childhood and adolescence were central to the psychosocial impact of SRS, and were not limited to height. These challenges, as well as symptoms such as pain and fatigue for women, have not previously been documented. To help individuals with SRS develop strategies to manage psychosocial issues, we recommend clinicians incorporate psychological services as an integral part of multidisciplinary teams managing individuals with SRS during childhood, adolescence and adulthood.
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