Living with epidermolysis bullosa: Daily challenges and health-care needs.

Sandra KearneyAnn DonohoeEilish McAuliffe

Published in: Health expectations : an international journal of public participation in health care and health policy (2019)

This article represents the health-care needs and preferences of a broad spectrum of those with EB, highlighting the need for a comprehensive service regardless of the severity of the condition.

Keyphrases

healthcare
mental health
physical activity
decision making
affordable care act
health insurance