"Is this the GVHD?" A qualitative exploration of quality of life issues in individuals with graft-versus-host disease following allogeneic stem cell transplant and their experiences of a specialist multidisciplinary bone marrow transplant service.
Isabella de Vere HuntJames M KilgourRobert DanbyAndy PeniketRubeta N MatinPublished in: Health and quality of life outcomes (2021)
These qualitative data reflect the heterogeneity of experiences of the GVHD patient population, reflecting the need for a flexible and nuanced approach to patient care with emphasis on comprehensive information provision. We have identified the key role that BMT specialist nurses within the multidisciplinary team play in supporting patients. We advocate future research should focus on ways to meet the complex needs of this patient group and ensure that the personal care and close relationships are not lost in service redesigns embracing remote consultations.
Keyphrases
- palliative care
- mental health
- bone marrow
- healthcare
- stem cells
- quality improvement
- case report
- end stage renal disease
- newly diagnosed
- ejection fraction
- stem cell transplantation
- mesenchymal stem cells
- chronic kidney disease
- single cell
- prognostic factors
- systematic review
- big data
- primary care
- patient reported outcomes
- current status
- general practice
- acute myeloid leukemia
- cell therapy