Hope, but never expect? Comparing parents' pre- and post-disclosure attitudes toward return of results from diagnostic exome sequencing for their child.
Candice CornelisAad TibbenEva BrilstraIneke BoltMarieke van SummerenNine KnoersAnnelien L BredenoordPublished in: Molecular genetics & genomic medicine (2024)
Results from this study are relevant for counseling and policy development.