A Web-Based Self-Management Support Prototype for Adults With Chronic Kidney Disease (My Kidneys My Health): Co-Design and Usability Testing.
Maoliosa DonaldHeather BeanlandsSharon E StrausMichelle D SmekalSarah GilMeghan J ElliottGwen HerringtonLori HarwoodBlair WaldvogelMaria DelgadoDwight SparkesAllison JaureAllan GrillMarta NovakMatthew Thomas JamesKenneth Scott BrimbleSusan M SamuelKaren TuJanine F FarragherBrenda R HemmelgarnPublished in: JMIR formative research (2021)
The My Kidneys My Health prototype is a systematically developed, multifaceted, web-based CKD self-management support tool guided by the theory and preferences of patients with CKD and their caregivers. The website is user friendly and provides features that improve user experience by tailoring the content and resources to their needs. A feasibility study will provide insights into the acceptability of and engagement with the prototype and identify preliminary patient-reported outcomes (eg, self-efficacy) as well as potential factors related to implementation. This work is relevant given the shift to virtual care during the current pandemic times and provides patients with support when in-person care is restricted.
Keyphrases
- healthcare
- chronic kidney disease
- patient reported outcomes
- palliative care
- end stage renal disease
- quality improvement
- health information
- public health
- mental health
- sars cov
- human health
- social media
- primary care
- health promotion
- affordable care act
- risk assessment
- chronic pain
- electronic health record
- health insurance
- decision making