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Perspectives of people with Parkinson's disease and family carers about disease management in community settings: A cross-country qualitative study.

María Victoria Navarta-SánchezAna María Palmar-SantosAzucena Pedraz-MarcosClaire ReidyDia SoilemeziAnita HaahrDorthe SørensenHelle Rønn SmithLine Kildal BragstadEllen Gabrielsen HjelleSilje Bjørnsen HaavaagMari Carmen Portillo
Published in: Journal of clinical nursing (2023)
This study will inform the management of Parkinson's disease at the community level and the use of resources not only directly linked to the health system. Taking into account all the actors that provide care and support to people with Parkinson' disease and family carers facilitates the creation of strategies that better respond to individual needs. Nurses and other health and social care professionals in the community and specialist levels of care should collaborate to develop multisectoral strategies that promote personalised and integrated care throughout the Parkinson's journey.
Keyphrases
  • healthcare
  • mental health
  • palliative care
  • parkinson disease
  • quality improvement
  • public health
  • affordable care act
  • deep brain stimulation
  • risk assessment
  • health information
  • chronic pain