Unmet need for patient involvement in rheumatology registries and observational studies: a mixed methods study.
Paul StudenicMandeep SekhonLoreto CarmonaMaarten P T de WitElena NikiphorouPublished in: RMD open (2022)
There is an unmet need to involve PRPs in registries and observational studies and to better define their required input during all research stages. This study provides suggestions for successful PRP integration.