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Qualitative feedback from caregivers in a multidisciplinary pediatric neuromuscular clinic.

Skylar M HessDorothy Adu-AmankwahCordelia R ElaihoLiam R ButlerSheena C RanadeBrijen J ShahKristin ShadmanRobert FieldsElaine P Lin
Published in: Journal of pediatric rehabilitation medicine (2024)
This study demonstrated that caregivers believed the MDC model was both efficient and convenient for pediatric patients with neuromuscular disorders. This model has the potential to streamline medical care and can be applied more broadly to improve care coordination for children with medical complexity.
Keyphrases
  • palliative care
  • healthcare
  • quality improvement
  • primary care
  • risk assessment
  • chronic pain
  • health insurance