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The National Hemophilia Foundation State of the Science Research Summit initiative: executive summary.

Leonard A ValentinoMichelle L WitkopMaria E SantaellaDonna DiMicheleMichael Recht
Published in: Expert review of hematology (2023)
The work summarized here, and in the accompanying supplement manuscripts , has implications not only for the US population but for people globally who have inherited BDs. The information is equally relevant to people living with hemophilia, VWD, the spectrum of inherited platelet disorders, ultra-rare factor deficiencies, and all other inherited BDs as it is to the health care providers and researchers focused on the care and treatment of inherited BDs in the US and globally.
Keyphrases
  • healthcare
  • quality improvement
  • public health
  • palliative care
  • health information
  • pain management
  • working memory
  • mass spectrometry
  • combination therapy
  • health insurance
  • chronic pain