Melissa Raspa (M Raspa)

Loop profile Scopus Author ID ORCID

Publication Activity (10 Years)

Years Active: 2018-2024
Publications (10 Years): 13

Top Topics

Decision Making

Intellectual Disability

Top Venues

JMIR research protocols

European journal of human genetics : EJHG

Journal of autism and developmental disorders

Journal of medical Internet research

This page only lists publications with an associated author ORCID identifier.

Publications

Melissa Raspa, Angela Gwaltney, Carla Bann, Jana von Hehn, Timothy A Benke, Eric D Marsh, Sarika U Peters, Amitha Ananth, Alan K Percy, Jeffrey L Neul
Psychometric Assessment of the Rett Syndrome Caregiver Assessment of Symptom Severity (RCASS). Journal of autism and developmental disorders (2024)
Melissa Raspa, Angela Gwaltney, Carla Bann, Jana von Hehn, Timothy A Benke, Eric D Marsh, Sarika U Peters, Amitha Ananth, Alan K Percy, Jeffrey L Neul
Psychometric Assessment of the Rett Syndrome Caregiver Assessment of Symptom Severity (RCASS). Journal of autism and developmental disorders (2024)
Melissa Raspa, Oksana Kutsa, Sara M Andrews, Angela Y Gwaltney, Erin Mallonee, Alissa Creamer, Paul K J Han, Barbara B Biesecker
Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening. European journal of human genetics : EJHG (2023)
Flora Tassone, Dragana D Protic, Emily Graves Allen, Alison Dalton Archibald, Anna Baud, Ted W Brown, Dejan B Budimirovic, Jonathan Cohen, Brett Dufour, Rachel Eiges, Nicola Elvassore, Lidia V Gabis, Samantha J Grudzien, Deborah A Hall, David R Hessl, Abigail Hogan, Jessica Ezzell Hunter, Peng Jin, Poonnada Jiraanont, Jessica Klusek, R Frank Kooy, Claudine M Kraan, Cecilia Laterza, Andrea Lee, Karen Lipworth, Molly Losh, Danuta Z Loesch, Reymundo Lozano, Marsha R Mailick, Apostolos Manolopoulos, Veronica Martinez-Cerdeno, Yingratana McLennan, Robert M Miller, Federica Alice Maria Montanaro, Matthew W Mosconi, Sarah Nelson Potter, Melissa Raspa, Susan M Rivera, Katharine Shelly, Peter K Todd, Katarzyna Tutak, Jun Yi Wang, Anne Wheeler, Tri Indah Winarni, Marwa Zafarullah, Randi J Hagerman
Insight and Recommendations for Fragile X-Premutation-Associated Conditions from the Fifth International Conference on FMR1 Premutation. Cells 12 (18) (2023)
Melissa Raspa, Oksana Kutsa, Sara M Andrews, Angela Y Gwaltney, Erin Mallonee, Alissa Creamer, Paul K J Han, Barbara B Biesecker
Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening. European journal of human genetics : EJHG (2023)
Katerina S Kucera, Jennifer L Taylor, Veronica R Robles, Kristin Clinard, Brooke Migliore, Beth Lincoln Boyea, Katherine C Okoniewski, Martin Duparc, Catherine W Rehder, Scott M Shone, Zheng Fan, Melissa Raspa, Holly L Peay, Anne C Wheeler, Cynthia M Powell, Donald B Bailey, Lisa M Gehtland
A Voluntary Statewide Newborn Screening Pilot for Spinal Muscular Atrophy: Results from Early Check. International journal of neonatal screening 7 (1) (2021)
Melissa Raspa, Rebecca R Moultrie, Danielle Toth, Saira Naim Haque
Barriers and Facilitators to Genetic Service Delivery Models: Scoping Review. Interactive journal of medical research 10 (1) (2021)
Melissa Raspa, Rebecca R Moultrie, Laura Wagner, Anne Edwards, Sara M Andrews, Mary Katherine Frisch, Lauren Turner-Brown, Anne C Wheeler
Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review. Journal of medical Internet research 22 (5) (2020)
Lauren A McCormack, Amanda Wylie, Rebecca Moultrie, Robert D Furberg, Anne C Wheeler, Katherine Treiman, Donald B Bailey, Melissa Raspa
Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability. PloS one 14 (10) (2019)
Katherine C Okoniewski, Anne C Wheeler, Stacey Lee, Beth Boyea, Melissa Raspa, Jennifer L Taylor, Donald B Bailey
Early Identification of Fragile X Syndrome through Expanded Newborn Screening. Brain sciences 9 (1) (2019)
Melissa Raspa, T Fitzgerald, R D Furberg, A Wylie, R Moultrie, M DeRamus, A C Wheeler, L McCormack
Mobile technology use and skills among individuals with fragile X syndrome: implications for healthcare decision making. Journal of intellectual disability research : JIDR 62 (10) (2018)
Robert Daniel Furberg, Alexa M Ortiz, Rebecca R Moultrie, Melissa Raspa, Anne C Wheeler, Lauren A McCormack, Donald B Bailey
A Digital Decision Support Tool to Enhance Decisional Capacity for Clinical Trial Consent: Design and Development. JMIR research protocols 7 (6) (2018)
Robert Daniel Furberg, Melissa Raspa, Anne C Wheeler, Lauren A McCormack, Donald B Bailey
A Digital Health App to Assess Decisional Capacity to Provide Informed Consent: Protocol for a Randomized Controlled Trial. JMIR research protocols 7 (11) (2018)