Victoria Hedley

Publication Activity (10 Years)

Years Active: 2021-2023
Publications (10 Years): 3

Top Topics

Chronic Kidney Disease

Ejection Fraction

Top Venues

The International journal of health planning and management

Journal of community genetics

Orphanet journal of rare diseases

This page only lists publications with an associated author ORCID identifier.

Publications

Victoria Hedley, Matt Bolz-Johnson, Ines Hernando, Rosalind Kenward, Rima Nabbout, Clara Romero, Franz Schaefer, Sheela Upadhyaya, null null
Together4RD position statement on collaboration between European reference networks and industry. Orphanet journal of rare diseases 18 (1) (2023)
Anando Sen, Avril Palmeri, Joanne Lee, Victoria Hedley, Jacques Thuet, Perrine Lignon, Valerie Cotonnec, Rebecca Leary, Sinéad Nally, Volker Straub
Understanding paediatric data standards challenges through academia-industry partnerships: A conect4children (c4c) qualitative study. The International journal of health planning and management (2022)
Victoria Hedley, Valentina Bottarelli, Ariane Weinman, Domenica Taruscio
Shaping national plans and strategies for rare diseases in Europe: past, present, and future. Journal of community genetics 12 (2) (2021)