Provider perspective on the role of palliative care in hypoplastic left heart syndrome.
Sarah LowensteinRobert MacauleyKathleen PerkoChristina RonaiPublished in: Cardiology in the young (2021)
Multidisciplinary healthcare professionals believe that prenatal palliative care consults provide a variety of benefits for patients and families with hypoplastic left heart syndrome. Additional, multi-centre research is necessary to evaluate whether prenatal palliative care consults should become standard of care for families expecting a child with a single ventricle defect.
Keyphrases
- palliative care
- advanced cancer
- end stage renal disease
- pregnant women
- heart failure
- ejection fraction
- newly diagnosed
- primary care
- chronic kidney disease
- healthcare
- atrial fibrillation
- prognostic factors
- peritoneal dialysis
- pulmonary hypertension
- mental health
- quality improvement
- mitral valve
- pulmonary artery
- chronic pain