The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings.
Kate H MarshallYves d'UdekemDavid S WinlawKim DalzielSusan R WoolfendenDiana ZanninoDaniel S J CostaRachel BishopDavid S CelermajerGary F ShollerNadine A KasparianPublished in: BMJ open (2022)
Approval has been obtained from all relevant Human Research Ethics Committees (HRECs), including the Sydney Children's Hospitals Network and the Royal Children's Hospital Melbourne HRECs. Study findings will be published in peer-reviewed journals and presented at national and international meetings and seminars.