21st Century Cures Act: ethical recommendations for new patient-facing products.
Brigitte N DurieuxMatthew DeCampCharlotta LindvallPublished in: Journal of the American Medical Informatics Association : JAMIA (2022)
This Perspective proposes 3 actionable principles, grounded in medical ethics, for services making use of health data: services should (1) provide informed, dynamic, regular consent, including control over data sharing, (2) promote inclusivity and equity, and (3) intentionally focus on consumer trust and the perception of value in the service provided.