The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease.
Anne-Sophie JannotClaude MessiaenAhlem KhatimThibaut PichonArnaud SandrinPublished in: Journal of the American Medical Informatics Association : JAMIA (2021)
The BaMaRa-BNDMR infrastructure provides an administrative and epidemiological resources for rare diseases in France.