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Community perspectives on the magnitude of Xeroderma pigmentosum and care-seeking practices in Micheweni district, Pemba: a mixed-methods cross-sectional study.

Lucas E MatembaElizabeth Henry ShayoAme MasemoNahya K NassorMayassa S AllyJudith Msovela
Published in: BMJ open (2024)
The study has shown that XP affects only few families, hence termed as concentrated rather than a generalised disease. Due to the rareness of the disease, majority of people in the district are unaware of the disease, hence confusing it with other skin conditions. There is a need for the government in collaboration with other stakeholders to provide educational programme to community members about the disease to address the misconception about the magnitude of the disease.
Keyphrases
  • healthcare
  • primary care
  • randomized controlled trial
  • clinical trial
  • south africa
  • palliative care
  • pain management
  • chronic pain