On the Current Care Situation and Treatment of Ocular Mucous Membrane Pemphigoid in Germany.
Rémi YaïciMathias RothLukas JuergensSami Al NawaisehDick BurkhardVolker BesgenMatthias FuestChristian GirbardtUlrike HampelJens HeichelArnd HeiligenhausMartina C Herwig-CarlVinodh KakkasseryKalliopi KontopoulouKarin U LöfflerPhilip Christian MaierBernhard NölleJohanna PachSebastian PaulUwe PleyerMichael PöllmannMark SaegerEnno SchmidtSebastian SiebelmannEkatarina SokolenkoLisa StrudelNicole StübigerMelih TarhanJohanna TheuersbacherChristian van OterendorpMarten WalkerCarolin WiechaAgata Anna WykrotaGerd GeerlingPublished in: Klinische Monatsblatter fur Augenheilkunde (2022)
This survey of German ophthalmology departments obtained data from about one third of the estimated total cohort of all patients with MMP in Germany. These are presumed to be exclusively patients with at least one ocular involvement. The complex care of these patients is usually provided in collaboration with a dermatologist and with the use of systemic anti-inflammatory medication. Currently, an ophthalmological MMP register is being established to better record the epidemiology and care situation of this rare disease in Germany and to improve it in the long term.
Keyphrases
- healthcare
- palliative care
- quality improvement
- end stage renal disease
- anti inflammatory
- newly diagnosed
- ejection fraction
- pain management
- chronic kidney disease
- affordable care act
- prognostic factors
- risk factors
- peritoneal dialysis
- cross sectional
- patient reported outcomes
- cell migration
- emergency department
- machine learning
- chronic pain