Primary palliative care research: opportunities and challenges.

Stephen BarclayEmily MoranSue BoaseMargaret JohnsonRoberta LovickJonathan GraffyPatrick L WhiteBrenda DeboysKaty HarrisonBrooke Swash

Published in: BMJ supportive & palliative care (2019)

Considerable difficulties were encountered with ethical permissions, with GP, DN and bereaved carer recruitment and both quantitative and qualitative data collection. These were overcome with flexibility of approach, perseverance of the research team and strong user group support. This enabled completion of the study which generated a unique primary palliative care data set.

Keyphrases

palliative care
advanced cancer
electronic health record
big data
high resolution
machine learning
data analysis
quality improvement
deep learning