Prenatal detection and evaluation of differences of sex development: A qualitative interview study of parental perspectives and unmet needs.
Jax WhiteheadJosephine HirschIlina RosoklijaAllison Goetsch WeismanJeffrey DunganCourtney FinlaysonDiane ChenEmilie K JohnsonPublished in: Prenatal diagnosis (2022)
This is the first study to gather qualitative data from parents whose children had prenatal findings of DSD. We identified multiple targets for intervention to improve care for patients with DSD across the lifespan, including improvements in clinician education, pre- and post-test counseling, and patient education materials.