Quality of life perceptions amongst patients co-infected with Visceral Leishmaniasis and HIV: A qualitative study from Bihar, India.
Sara Jaye SanfordPragya KumarSanjay PandeyShahwar KazmiLaura Moreto-PlanasAlok RanjanSakib BurzaPublished in: PloS one (2020)
Inadequate social support and referral pathways that were not conducive to patient needs negatively impacted patients' quality of life. The dual burden of poverty interacting with the severity and chronicity of KA-HIV co-infection means financial support, increased community engagement, and collaborative decision making are crucial for co-infected patients. Increased provider awareness of co-infection and effective stigma-reduction interventions should be integrated to ensure that appropriate and effective access to care is possible for this vulnerable population. A sustainable long-term strategy requires a people-centered approach wherein the perceptions and life circumstances of patients are taken into account in the medical decision making process.
Keyphrases
- end stage renal disease
- healthcare
- social support
- newly diagnosed
- chronic kidney disease
- primary care
- decision making
- peritoneal dialysis
- human immunodeficiency virus
- depressive symptoms
- antiretroviral therapy
- hepatitis c virus
- hiv positive
- palliative care
- hiv infected
- hiv aids
- chronic pain
- mental illness
- risk factors
- patient reported