Perceived Significance of Engagement in Research Prioritization Among Chronic Kidney Disease Patients, Caregivers, and Health Care Professionals: A Qualitative Study.
Meghan J ElliottZahra GoodarziJoanna E M SaleLinda A WilhelmAndreas LaupacisBrenda R HemmelgarnSharon E StrausPublished in: Canadian journal of kidney health and disease (2018)
Stakeholder engagement in nondialysis CKD research prioritization encouraged the integration of stakeholder communities, an appreciation of the CKD experience, and a refocusing of participants' commitment to research and care. Findings highlight considerations for future health research engaging stakeholders, particularly those living with CKD, as research partners.
Keyphrases
- chronic kidney disease
- end stage renal disease
- healthcare
- palliative care
- social media
- peritoneal dialysis
- ejection fraction
- depressive symptoms
- newly diagnosed
- social support
- physical activity
- mental health
- prognostic factors
- quality improvement
- affordable care act
- pain management
- health information
- patient reported outcomes
- health insurance
- antiretroviral therapy
- cell fate
- hiv infected