Parents' Experiences of Having a Young Child With Acute Lymphoblastic Leukemia in China.
Qian LiuMarcia A PetriniDan LuoBing Xiang YangJiong YangJoan E HaasePublished in: Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses (2020)
Parents put their child's health as their top priority. They strive to manage uncertainty about prognosis and cope with enormous pressures caused by children's suffering, financial burden, and stigma. Parents also express their resilience and hope throughout their child's cancer journey. Support services to strengthen specific families' protective factors (i.e., family/community support, hope, and positive coping) are needed to foster resilience and quality of life. Health care professionals should systematically assess parents' needs, provide validated education materials, and implement tailored interventions across the cancer continuum. Public education and advocacy about cancer is also necessary to decrease cancer-related stigma, and provide financial aid and health care resources in pediatric oncology.
Keyphrases
- healthcare
- mental health
- papillary thyroid
- acute lymphoblastic leukemia
- social support
- childhood cancer
- squamous cell
- mental illness
- young adults
- climate change
- public health
- depressive symptoms
- hiv aids
- squamous cell carcinoma
- human immunodeficiency virus
- health information
- quality improvement
- smoking cessation
- allogeneic hematopoietic stem cell transplantation