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How the coronavirus pandemic affected the lives of people with ALS and their spouses in the UK from spouses' perspectives: a qualitative study.

Lyndsay DidcoteAmmar Al ChalabiLaura H Goldstein
Published in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2024)
While many reactions to the pandemic reported by spouses of pwALS may have been similar to those of the general population or other vulnerable groups, interviews indicated the potential for the pandemic to have made more apparent certain aspects of behavioral change in pwALS with which carers may require support. Clinicians need to acknowledge spouses' concerns about the potential limitations of remote clinical consultations, enquire about cognitive and behavioral change, and consider how input should be best provided in such limiting circumstances.
Keyphrases
  • sars cov
  • coronavirus disease
  • respiratory syndrome coronavirus
  • human health
  • palliative care
  • risk assessment
  • cross sectional
  • magnetic resonance
  • primary care
  • general practice
  • climate change