Preliminary Findings of Focus Group Analysis to Support the Needs of Adolescent and Young Adult Patients and Survivors of Cancer: Steps Toward a National Adolescent and Young Adult Supportive Care Program.
Tushar VoraStacy ChapmanSerena UppalShaayini ShanawazCristina EmanueleAbha A GuptaJonathan AveryPublished in: Journal of adolescent and young adult oncology (2021)
Adolescents and young adult (AYA) oncology care has evolved to address their unique supportive care needs, yet deficiencies remain. We planned a multiphase sequential mixed methods study beginning with focus groups (FGs) with AYAs receiving care at the Princess Margaret Cancer Centre, to improve supportive care delivery. Herewith, we report on the preliminary findings from first phase of project and outline future expected goals. Our findings suggest four major themes identified from FG discussion with AYAs: (1) having peer-driven support, (2) incorporating hybrid approach to information delivery, (3) integrating general practitioners in AYAs care, and (4) providing AYAs-specific supportive care programs.
Keyphrases
- young adults
- quality improvement
- palliative care
- healthcare
- childhood cancer
- affordable care act
- pain management
- randomized controlled trial
- end stage renal disease
- chronic kidney disease
- physical activity
- clinical trial
- squamous cell carcinoma
- health insurance
- chronic pain
- newly diagnosed
- social media
- patient reported