Facial photoprotection in xeroderma pigmentosum (XP) patients: Validation of a new self-reported questionnaire of adherence.

Martha CanfieldSam NortonJessica WalburnNatalie Morrison-BowenKirby SainsburyVera Araujo-SoaresRobert SarkanyJohn Weinman

Published in: Photodermatology, photoimmunology & photomedicine (2019)

Our questionnaire was reliable and had good convergent validity with other indicators of photoprotection. This questionnaire could assist clinicians to detect low levels of adherence, and the methodology used to develop validated questionnaires for other photosensitive conditions.

Keyphrases

psychometric properties
patient reported
cross sectional
ejection fraction
prognostic factors
palliative care
type diabetes
skeletal muscle
soft tissue