Consensus protocols for the diagnosis and management of the hereditary autoinflammatory syndromes CAPS, TRAPS and MKD/HIDS: a German PRO-KIND initiative.
Sandra HansmannElke LainkaGerd HorneffDirk HolzingerNikolaus RieberAnnette F JanssonAngela Rösen-WolffGabi ErbisMartina PrelogJuergen BrunnerSusanne M BenselerJasmin Beate Kuemmerle-DeschnerPublished in: Pediatric rheumatology online journal (2020)
The PRO-KIND CAPS/TRAPS/MKD/HIDS working group established the first evidence-based, actionable treat-to-target consensus treatment plans for three rare hereditary autoinflammatory diseases. These provide a path to a rapid evaluation, effective control of disease activity and tailored adjustment of therapies. Their implementation will decrease variation in care and optimize health outcomes for children with AID.
Keyphrases
- disease activity
- quality improvement
- systemic lupus erythematosus
- rheumatoid arthritis
- healthcare
- rheumatoid arthritis patients
- ankylosing spondylitis
- anti inflammatory
- juvenile idiopathic arthritis
- primary care
- palliative care
- young adults
- clinical practice
- health insurance
- smoking cessation
- combination therapy
- replacement therapy
- loop mediated isothermal amplification