Distribution of weight, stature, and growth status in children and adolescents with spinal muscular atrophy: An observational retrospective study in the United States.
Basil T DarrasSabrina GuyeJanine HoffartSophie SchneiderIsaac GravestockKsenija GorniSabine Fuerst-RecktenwaldRenata S ScalcoRichard S FinkelDarryl C De VivoPublished in: Muscle & nerve (2022)
More research is needed to understand which factors influence growth longitudinally, and how to accurately capture growth in patients with SMA. Further research should investigate the best time to provide feeding support to avoid underweight, especially in patients with Type 1, and how to avoid the risk of overfeeding, especially in patients with Types 2/3 SMA.