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Online Forums as a Tool for Broader Inclusion of Voices on Health Care Communication Experiences and Serious Illness Care: Mixed Methods Study.

Carine DavilaStephanie H ChanAnna GoslineZamawa ArenasJane KavanaghBrian FeltzElizabeth McCarthyTyrone PittsChristine Seel Ritchie
Published in: Journal of medical Internet research (2023)
We achieved modest overrepresentation of people who were over 65 years old, identified as non-Hispanic Black, and had low income in our online forums. The size of the online forums (N=580) reflected the voices of 93 Black and 55 Hispanic/Latino participants. Individuals who identify as Hispanic/Latino remained underrepresented, likely because the online forums were offered only in English. Overall, our findings demonstrate the feasibility of using the online forum qualitative approach in a mixed methods study to contextualize, clarify, and expound on quantitative findings when designing public health and clinical communications interventions.
Keyphrases
  • health information
  • social media
  • african american
  • healthcare
  • public health
  • mental health
  • palliative care
  • randomized controlled trial
  • systematic review
  • clinical trial
  • high resolution
  • quality improvement