Patau and Edwards Syndromes in a University Hospital: beyond palliative care.

Ligia Marçola Ivete Zoboli Rita Tiziana Verardo Polastrini Silvia Maria de Macedo Barbosa Mario Cicero Falcão Paula de Vicenzi Gaiolla

Published in: Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo (2023)

Patients with T13 and T18 have high morbidity and mortality, and long hospital and ICU stays. Multicentric studies are needed to allow the analysis of important aspects for creating protocols that, seeking therapeutic proportionality, may bring better quality of life for patients and their families.

Keyphrases

palliative care
end stage renal disease
ejection fraction
newly diagnosed
intensive care unit
mental health
prognostic factors
peritoneal dialysis
advanced cancer
patient reported outcomes
mechanical ventilation