Fostering Inclusivity in Research Engagement for Underrepresented Populations in Parkinson's Disease: The FIRE-UP PD study.
Juliana M IsonJonathan D JacksonHelen HemleyAllison WillisBernadette SiddiqiEric A MacklinChristine UlysseMichael S FittsTiffany T-H PhamMitra AfshariPinky AgarwalMichael AminoffStephanie BissonnetteMichelle FullardTarannum S KhanDanielle N LarsonCatherine WielinskiAngie V SanchezPublished in: Contemporary clinical trials (2024)
Research participation demographics reflective of the general population are critical to PD investigation and treatment. The FIRE-UP PD Study showed the effectiveness of localized community engagement strategies in increasing URG recruitment to PD research. Therefore, further PD research employing community-based methods to improve diverse participant recruitment is needed.