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Management of rare movement disorders in Europe: outcome of surveys of the European Reference Network for Rare Neurological Diseases.

Cèlia PainousN J H van OsA DelamarreI MichailovieneM J MartiB P van de WarrenburgW G MeissnerA UtkusC ReinhardH GraessnerMarina A J Tijssen
Published in: European journal of neurology (2020)
The management of these conditions in EU countries is unequal. The survey provides evidence that a European care-focused network that is able to address the unmet rare neurological disease care needs and inequalities is highly warranted.
Keyphrases
  • healthcare
  • palliative care
  • quality improvement
  • cross sectional
  • affordable care act
  • blood brain barrier