Management of rare movement disorders in Europe: outcome of surveys of the European Reference Network for Rare Neurological Diseases.
Cèlia PainousN J H van OsA DelamarreI MichailovieneM J MartiB P van de WarrenburgW G MeissnerA UtkusC ReinhardH GraessnerMarina A J TijssenPublished in: European journal of neurology (2020)
The management of these conditions in EU countries is unequal. The survey provides evidence that a European care-focused network that is able to address the unmet rare neurological disease care needs and inequalities is highly warranted.