Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers.
Vandenbogaerde IsabelRose MirandaJan L De BleeckerEmma CarduffAgnes van der HeideLieve Van den BlockLuc DeliensAline De VleminckPublished in: BMJ open (2022)
This protocol has been approved by the central ethical committee of the University Hospital of Brussels, and local ethical committees of the other participating hospitals (B.U.N. B1432020000128). The results will be disseminated via the research group's (endoflifecare.be) website, social media and newsletter and via presentations at national and international scientific conferences.